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An open letter to my daughter (written exactly one year ago tonight):
To my best girl, I’m sitting here in our dark hotel room listening to you breathe as you sleep, along with the beep-click-whir of the machine giving you chemotherapy, and the chatter of the nurses in the hall. I’ve been looking out the window and seeing the cars pass on the freeway, probably all heading […]
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Random Acts of Kindness… and how you can change the world with a postcard
Random acts of kindness…. We have received so many of these, and they have ultimately restored our faith in community and humanity. They have reminded us that we are all bound together. That we are never alone in our fight. That even when things seem to be at their darkest, there is light all […]
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Alternate Reality
Well, a calm day led to an eventful night (which is never good here). Elayna is fine now, but I definitely prefer boring. After Jake left (we had been sitting around watching her nap all evening) she sat up at 10pm and declared herself ready to watch a show. Silly girl. I could tell her throat […]
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Toxic
I’m getting a lot of questions about this last high dose chemo and the showers and realizing that it’s hard to understand why it’s such a big deal. It would be a huge disservice to Elayna and all kids going through this kind of treatment not to explain. This is at the core of why […]
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This picture shouldn’t be of my child… but it is.
I’ve been having a hard time finding the words to describe how this image affects me. There is still a part of me that looks at this and is in utter disbelief that my child- my small, sweet, innocent, amazing, loved, soulmate daughter could be the child in this photograph. That same part of me […]